The NZ registry is a valuable database of comprehensive injury data for all hospital-admitted major trauma patients.

 

New Zealand and International researchers may wish to request national aggregate NZ-MTR data for conducting their research. To do this: 

 

 

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1. Once you had read and understood the Data Policy Use Guidelines, download the Provision of data form, Fee for provision of data form, and Data Request form

2. Complete all the forms and submit to help@majortrauma.nz 

3. Your request will be reviewed at the next National Data Governance group meeting. The group convenes approximately every four months. 

4. Once approved you will be contact shortly after, and data will be transferred securely in the appropriate format. 

 

The Data Governance group is an independent working group led by an independent chair, that ensures the ethical and appropriate use of national data held in the NZ-MTR. In its decision to release data, the Group considers the privacy of patients, New Zealand law under the relevant provisions, and contribution to the field of knowledge in trauma.

The Privacy framework (which encompasses the technical solution and the process of collection and use of data) has been endorsed by the Office of the Privacy Commission. In addition, the following Acts and Guidelines govern the use of NZ-MTR data:

  • Health Act 1956,
  • New Zealand Public Health and Disability Act 2000,
  • Privacy Act 1993,
  • Public Records Act 2005
  • DHB General Disposal Authority
  • Health Information Privacy Code 1994 (HIPC)
  • Health Information Governance Guidelines 2017
  • HISO 10029:2015 Health Information Security Framework

 

As DHBs manage the use of their patient information and data within the bounds of various policies, it is not required for DHBs to submit requests to use local data submitted by them. This is similar for regions where there is a regional data sharing agreement in place. In these cases, the source data may be acknowledged, but it must be clear that NZ-MTR and the National Trauma Network has not provided oversight or quality control for the interpretation and analysis of the data. 

 

 


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If you had any queries regarding the data request process or the trauma registry get in touch with us.